Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, October 23, 2012

making

With so many wonderful people helping in raising money for Maybelle's wish to go to The Ellen show, Maybelle was very keen to help too.




I don't know what made me more proud.




The fact that she thought of helping all on her own.




Or the fact that she's making little hexie brooches a la dearfii style. 




Either way, I'm bursting with pride xox

Friday, October 12, 2012

Maybelle's Wish

Maybelle is amazing. She rarely complains about cancer or the treatment. And she hasn't asked for anything. She really is remarkable. She has come to terms with her cancer faster than any of us grown ups.

Dont get me wrong. She is a pre teen. She is not perfect. But for a large part of the time she is extraordinary.

So about 3 weeks ago, when she looked at me and said, I know what I want to wish for. I listened.

And when she said her 'wish was to go to The Ellen Show' asked if she was sure and said ok, we'll try our best. Thats all we can do.

Naturally I tweeted and facebooked. The response has been amazing.

Make-a-wish no longer do overseas wishes, the cost is too much. So we are on our own with the help of hundreds.
And here is how we are doing it!

Cam has designed bags as a fundraiser.
You can pre order them here.


Cam has also designed the little Get Maybelle to the Ellen show logos and we already have business cards thanks to Cam!

We have a facebook page and my dear friend Mel is running a facebook auction.
Donations very welcome as are bidders! Auction is in November, great time to get some Christmas shopping done.

Lisa (also Cameron Solutions) has designed us a webpage!

Our local Rotary, with the help of the local Bendigo banks are running a BBQ at the Ballarat Spring fest next month.

Huge thank you to you all!

And there have been hundreds of others send emails, tweets and messages on facebook. Thank you, thank you, thank you.

Our goal is to get 1/2 the family there. $9,000. It's huge. But we will get there. I know we will.

If you want to help, please see the web page, facebook pages or email me. Blogging, liking, sharing all help get attention and help raise money. And if you like, you can email the ellen show directly.

Lets get Maybelle to The Ellen Show!
Thanks so much xox

Tuesday, October 9, 2012

while I was away...

While I was away we have had 3 birthdays in this house. 

7 hospital admissions for 2 different kids.

We have moved house.

Curtains I made for new kitchen

Maybelle hair has grown, fallen out and grown again.

Her treatment has finally reached the less intense 'maintenance' stage.

However this means she can still get sick and land in hospital.

And most importantly....I leant to knit




So folks, what have you been up too? xox

Thursday, January 5, 2012

A new year

A good time to learn a new skill.





I for one am very glad to see the back of 2011. Last year will always be the year my baby got cancer. And while 2012 is full of questions, worry and the unknown at least we know that there will be nothing 'normal' or predictable about it.

I hope you all had a safe, happy holiday season. And thank you all again for your awesomeness. Without Facebook, twitter and blogger I think I might have gone mad....er xox


- Posted using BlogPress from my iPhone

Tuesday, November 22, 2011

not all Chemo and cancer
















There is some crafting too xox

- Posted using BlogPress from my iPhone

Saturday, November 19, 2011

3 weeks in....

There has been a few tears, a few melt downs, lots of learning and accepting, loads of talking, and most importantly, lots and lots of smiles and laughs!






Her treatment is going really well. We are back in hospital after a week of being out. 2 weeks of iv antis to come but is just a wee bump. Nothing out of the ordinary.

Maybs and I had been staying at Ronald McDonald house, or Ronnie Mac for those in the know ;) We got to meet Good Charlotte last week as part of McHappy Day! So awesome!





She is such a rock star!!

Maybs decided to dye her hair pink, blue and purple. Seeing as though it is going to fall out, why not have fun!















Maybelle also decided that instead of letting her hair fall out, she'd take control and shave her head when she was ready. Thursday was that day. And I have never ever been more proud. Her strength and courage amazes me every day. She's not perfect oh no! And she's still Maybelle. But her spirit is shining. And that is remarkable!







Thank you. Thank you. Thank you. The messages, emails, tweets, phone calls, texts etc have been reassuring and uplifting. There is a reason the blogging community is so wonderful because it really is a community.

Very special shout out to Fi, dear dear Fi! You have been a rock. You, my dear, are my super star.

There is a facebook group, ALL about Maybelle if you find it, ask to join and I'll add you. I think that how it works lol!

Much love and gratitude xox

- Posted using BlogPress from my iPhone

Thursday, November 3, 2011

Cancer

Not a word I ever though I would use here but here we go....

Our gorgeous, spirited oldest child, Maybelle, has been diagnosed with acute lymphoblastic leukemia. It is treatable. It is curable. It is bloody scary. And I can not believe this is happening to her and too us.





What started as her feeling flat, progressed to changes in skin colour and bruising, and now hospital, blood transfusions, bone marrow testing and Chemo. All in a matter of weeks.

It is just plan bad luck. Nothing we did or didn't do caused it. It isn't fair and I'm really pissed that our family has been dealt this. Like we haven't already been though enough!!

But we will march on. We will do what needs to be done. It is a very very very long road ahead of us. Anything from 2-3years of treatment. She will loose her hair. She will be very sick at times but she will always be our Maybelle. Even when the steroid rage kicks in ;)

I'm ok. Kinda, sorta. I know I don't any idea about what's to come. Part of that's ok, part of that is bloody scary. I know I have THE most amazing people around Maybs and I to support and love us through this. We are so bless that under all the crazy that is my family, they are all there. 100% no questions asked. As with my beautiful friends. I already owe a few of you a night on the town and it's only round 1 lol!

In the coming days we'll de setting up a closed facebook group to inform people on mass so the family and I can concentrate on Maybs and her recovery. Once set up, I'll add a link and please feel free to ask to join.

And the little miss herself? She's ok. So much to take in. She knows she has a cancer called leukemia and we have to have Chemo to kill it. The childrens hospital is amazing and I'm sure that has helped her tremendously.

I'll leave you with a picture of her and her new toy......




An iPad!!

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