Showing posts with label life. Show all posts
Showing posts with label life. Show all posts

Thursday, January 5, 2012

A new year

A good time to learn a new skill.





I for one am very glad to see the back of 2011. Last year will always be the year my baby got cancer. And while 2012 is full of questions, worry and the unknown at least we know that there will be nothing 'normal' or predictable about it.

I hope you all had a safe, happy holiday season. And thank you all again for your awesomeness. Without Facebook, twitter and blogger I think I might have gone mad....er xox


- Posted using BlogPress from my iPhone

Saturday, November 19, 2011

3 weeks in....

There has been a few tears, a few melt downs, lots of learning and accepting, loads of talking, and most importantly, lots and lots of smiles and laughs!






Her treatment is going really well. We are back in hospital after a week of being out. 2 weeks of iv antis to come but is just a wee bump. Nothing out of the ordinary.

Maybs and I had been staying at Ronald McDonald house, or Ronnie Mac for those in the know ;) We got to meet Good Charlotte last week as part of McHappy Day! So awesome!





She is such a rock star!!

Maybs decided to dye her hair pink, blue and purple. Seeing as though it is going to fall out, why not have fun!















Maybelle also decided that instead of letting her hair fall out, she'd take control and shave her head when she was ready. Thursday was that day. And I have never ever been more proud. Her strength and courage amazes me every day. She's not perfect oh no! And she's still Maybelle. But her spirit is shining. And that is remarkable!







Thank you. Thank you. Thank you. The messages, emails, tweets, phone calls, texts etc have been reassuring and uplifting. There is a reason the blogging community is so wonderful because it really is a community.

Very special shout out to Fi, dear dear Fi! You have been a rock. You, my dear, are my super star.

There is a facebook group, ALL about Maybelle if you find it, ask to join and I'll add you. I think that how it works lol!

Much love and gratitude xox

- Posted using BlogPress from my iPhone

Thursday, November 3, 2011

Cancer

Not a word I ever though I would use here but here we go....

Our gorgeous, spirited oldest child, Maybelle, has been diagnosed with acute lymphoblastic leukemia. It is treatable. It is curable. It is bloody scary. And I can not believe this is happening to her and too us.





What started as her feeling flat, progressed to changes in skin colour and bruising, and now hospital, blood transfusions, bone marrow testing and Chemo. All in a matter of weeks.

It is just plan bad luck. Nothing we did or didn't do caused it. It isn't fair and I'm really pissed that our family has been dealt this. Like we haven't already been though enough!!

But we will march on. We will do what needs to be done. It is a very very very long road ahead of us. Anything from 2-3years of treatment. She will loose her hair. She will be very sick at times but she will always be our Maybelle. Even when the steroid rage kicks in ;)

I'm ok. Kinda, sorta. I know I don't any idea about what's to come. Part of that's ok, part of that is bloody scary. I know I have THE most amazing people around Maybs and I to support and love us through this. We are so bless that under all the crazy that is my family, they are all there. 100% no questions asked. As with my beautiful friends. I already owe a few of you a night on the town and it's only round 1 lol!

In the coming days we'll de setting up a closed facebook group to inform people on mass so the family and I can concentrate on Maybs and her recovery. Once set up, I'll add a link and please feel free to ask to join.

And the little miss herself? She's ok. So much to take in. She knows she has a cancer called leukemia and we have to have Chemo to kill it. The childrens hospital is amazing and I'm sure that has helped her tremendously.

I'll leave you with a picture of her and her new toy......




An iPad!!

- Posted using BlogPress from my iPhone

Friday, February 11, 2011

order

I noticed a theme today as I finished one quilt top and started another

Order
 

Control


Simple


It appears I am seeking out what life can't give me right now xox

Thursday, November 25, 2010

Reality

Reality.
I'm busy.
 The kind of don't talk to me, touch me or even look at me kind of busy.
Not even reading any blogs kind of busy!!
Too busy to even tweet kind of busy!!!!!!

We have no clothes in our draws kind of busy.
And we are not even going to talk about the bathrooms......


Popped out to grab the extra table from my partner in crime Mel today. The piles of sewing were taking over the house. There are still piles on the couch and kitchen bench.

Big kid bags


Little kid bags


Loads of little zippers

There has been new, old and different products sewn for market. Still an amazing amount to get through. I have to say. I am really enjoying it.

All of this while hubby is settling into a new job that has him flying all over the NT and away a lot more than at home *sigh* That's life!

So I am sorry if you are worrying or wondering what on earth has happened to me. I am fine :) And there are quite a few emails I need to return so please hang in there and I will get to you asap. I am also very very behind in swaps. Please forgive me. I will get to you too.

Better get off the computer. Build up storm has just hit and it is a doozy! xox

Tuesday, October 12, 2010

life and stuff

It appears I missed a blogtoberfest day. 
It is a marathon not a sprint and it appears I was very quick out of the blocks.

Life, you know, has away of toying with you....


One minute you are sure and confident in the path you are taking....


...and the next thing you know, you are thinking of changing direction...

Luckily I have little lady burrito to help me unwind at the end for the day 

Friday, October 8, 2010

Thank you :)


Thank you!
I was so worried about blogging a little of my story. I have been thinking about it for ages. It was a really hard thing for me to say 'out loud'. Not many people in my current life know. So to make it really public is a big thing.
So thank you all for you kind comments, emails, tweets and facebook messages. I am a little overwhelmed at your kindness and understanding. Thank you :)

In other news, hubby has finished up at his job he has had for 3 1/2 years. Thanks a long time in mining. And a long time for us. Next week we start a new adventure in residential, campaign based work. So instead of being away 2/3's of the year it is likely to be less then 1/2! Ekkkk!!

Mmmmmm what shall I do with this extra time......!!! xox
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